Mission Twisha Fund Appeal To Save Little Twisha, A Child Born Without Foodpipe
This girl is Twisha Makwana. Her mother Sweety Makwana and Twisha are currently in Boston MA at the Children's Hospital for a consultation & examnia & reached out to the Boston Community to see if we could help.
Twisha is 36 months old girl, residing in Sydney Australia with her Single Mother, Sweety Makwana. Twisha is suffering from a very rare birth defect called “Long Gap Esophageal Atresia – (LGOA)”. This means, she is born with an incomplete Esophagus (a tube/food-pipe that connects the throat with the stomach); hence she is unable to eat by mouth. Till date she has undergone around 20 various Major & Minor surgical procedures in Sydney, Australia with no improvement in her birth condition; rather her Esophageal condition has even worsened due to scare tissues caused by many surgeries.
To have a fair chance of living a normal life, Twisha needs to go to Children’s Hospital Boston, MA, USA to attain a specialized and the most advanced medical treatment called “The Foker Treatment”, by pioneer of the treatment, Dr. John E Foker and his trained team. This medical treatment costs nearly $1M that Twisha’s Mother is not able to pay her own.
Application was made for a Financial Grant from the Australian Government under “Medical Treatment Overseas Program” (MTOP), but the assessment has been negative stating that, alternative replacement procedures, such as Gastric Pull Up, Colonic Interposition, etc. are available in Australia. The alternate replacement treatments that will leave Twisha with physical deformity causing other medical complications and medicines for rest of her life, which can be life threatening.
Boston as a community is coming together to give back and we currently have two options.
1) The Boston online fundraiser link - https://www.giveforward.com/fundraiser/wmc4/mission-twisha-inc-
2) A fundraiser Social/Mixer on April 19 2014 called Give it your BEST (where all proceeds go towards Mission Twisha). The event link has a Voluntary donation to attend the event. See flyer attached as well. - http://giveityourbest.eventbrite.com
More details/info can also be found on www.Bostondesievents.com.
Share your Comments
In this Issue
|Annual Bhajan Utsav At Shri Dwarkamai Vidhyapeeth |
Shri Dwarkamai Vidhyapeeth of North Billerica hosted the Annual Bhajan Utsav in the week of Vasantha Navaratri to welcome the beginning of spring or Hindu new year. [more]
|A Huge Success, A Multimedia Production “Chalte Chalte” |
"Chalte Chalte" a memorable evening indeed, dedicated to the beautiful Tragedy Queen of Indian Cinema, Meena Kumari. With a supporting cast of nearly 40 volunteers, it was spearheaded by Razia Mashkoor. [more]
|Miss America Nina Davuluri At Akshaya Patra Fundraiser|
Akshaya Patra, USA held its Boston Gala, the 7th Annual Boston Benefit Event on March 29th at Cambridge, Massachusetts. The organization raised nearly $600,000 to support the midday meals programs at government and government-assisted schools. [more]
|TeamAIDAsha Marathon Program Enters 12th Year, Calls To’ Run For Change’|
60 alumni runners and running enthusiasts met on April 6th, at MIT to attend the information session of TeamAidAsha running program (TAA). TAA program trains interested individuals to run Half or Full Marathon, who help in raising funds to support development projects. [more]
|2014 NSF Worcester Regional Education Bees|
NSF Massachusetts, Worcester chapter recently conducted its regional contests over the April 5-6th weekend with over 400 kids participating. Mahadevan Padmanabhan and Poonam Ahluwalia presided over the awards ceremonies. The winners were... [more]
You may also access this article through our web-site http://www.lokvani.com/