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Mission Twisha Fund Appeal To Save Little Twisha, A Child Born Without Foodpipe

Press Release
04/10/2014

This girl is Twisha Makwana. Her mother Sweety Makwana and Twisha are currently in Boston MA at the Children's Hospital for a consultation & examnia & reached out to the Boston Community to see if we could help.

Twisha is 36 months old girl, residing in Sydney Australia with her Single Mother, Sweety Makwana. Twisha is suffering from a very rare birth defect called “Long Gap Esophageal Atresia – (LGOA)”. This means, she is born with an incomplete Esophagus (a tube/food-pipe that connects the throat with the stomach); hence she is unable to eat by mouth. Till date she has undergone around 20 various Major & Minor surgical procedures in Sydney, Australia with no improvement in her birth condition; rather her Esophageal condition has even worsened due to scare tissues caused by many surgeries.

To have a fair chance of living a normal life, Twisha needs to go to Children’s Hospital Boston, MA, USA to attain a specialized and the most advanced medical treatment called “The Foker Treatment”, by pioneer of the treatment, Dr. John E Foker and his trained team. This medical treatment costs nearly $1M that Twisha’s Mother is not able to pay her own.

Application was made for a Financial Grant from the Australian Government under “Medical Treatment Overseas Program” (MTOP), but the assessment has been negative stating that, alternative replacement procedures, such as Gastric Pull Up, Colonic Interposition, etc. are available in Australia.  The alternate replacement treatments that will leave Twisha with physical deformity causing other medical complications and medicines for rest of her life, which can be life threatening.

Boston as a community is coming together to give back and we currently have two options.

1) The Boston online fundraiser link - https://www.giveforward.com/fundraiser/wmc4/mission-twisha-inc-

2) A fundraiser Social/Mixer on April 19 2014 called Give it your BEST (where all proceeds go towards Mission Twisha). The event link has a Voluntary donation to attend the event. See flyer attached as well. - http://giveityourbest.eventbrite.com

More details/info can also be found on www.Bostondesievents.com.




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