Mission Twisha Fund Appeal To Save Little Twisha, A Child Born Without Foodpipe
This girl is Twisha Makwana. Her mother Sweety Makwana and Twisha are currently in Boston MA at the Children's Hospital for a consultation & examnia & reached out to the Boston Community to see if we could help.
Twisha is 36 months old girl, residing in Sydney Australia with her Single Mother, Sweety Makwana. Twisha is suffering from a very rare birth defect called “Long Gap Esophageal Atresia – (LGOA)”. This means, she is born with an incomplete Esophagus (a tube/food-pipe that connects the throat with the stomach); hence she is unable to eat by mouth. Till date she has undergone around 20 various Major & Minor surgical procedures in Sydney, Australia with no improvement in her birth condition; rather her Esophageal condition has even worsened due to scare tissues caused by many surgeries.
To have a fair chance of living a normal life, Twisha needs to go to Children’s Hospital Boston, MA, USA to attain a specialized and the most advanced medical treatment called “The Foker Treatment”, by pioneer of the treatment, Dr. John E Foker and his trained team. This medical treatment costs nearly $1M that Twisha’s Mother is not able to pay her own.
Application was made for a Financial Grant from the Australian Government under “Medical Treatment Overseas Program” (MTOP), but the assessment has been negative stating that, alternative replacement procedures, such as Gastric Pull Up, Colonic Interposition, etc. are available in Australia. The alternate replacement treatments that will leave Twisha with physical deformity causing other medical complications and medicines for rest of her life, which can be life threatening.
Boston as a community is coming together to give back and we currently have two options.
1) The Boston online fundraiser link - https://www.giveforward.com/fundraiser/wmc4/mission-twisha-inc-
2) A fundraiser Social/Mixer on April 19 2014 called Give it your BEST (where all proceeds go towards Mission Twisha). The event link has a Voluntary donation to attend the event. See flyer attached as well. - http://giveityourbest.eventbrite.com
More details/info can also be found on www.Bostondesievents.com.
Share your Comments
In this Issue
|Raaga-Rang Brings Warm April Showers!|
Raaga-Rang 2014 once again swept in with a torrent of melodies and drenched an overflowing auditorium with unforgettable music! A bewitched evening that reverberated on both sides of the stage. The artists and the audience, in a perfectly symbiotic relationship, carried each other to ecstasy! [more]
|Annual Bhajan Utsav At Shri Dwarkamai Vidhyapeeth |
Shri Dwarkamai Vidhyapeeth of North Billerica hosted the Annual Bhajan Utsav in the week of Vasantha Navaratri to welcome the beginning of spring or Hindu new year. [more]
Anandibai Joshi, a graduate of Women's Medical College of Pennsylvania, eventually became the first licensed female doctor in India.
Imaginary Republic of Massachusetts would be the fourth-wealthiest nation in the world. [more]
|In Conversation With Venkatesh Shukla|
Venkatesh Shukla, President of TiE Silicon Valley, is the founding chair of TIE Angels, the successful angel investing platform of TiE SV. Shukla was also the President of Foundation for Excellence (www.ffe.org) for 18 years. He shared insights on doing a start-up and his charitable interests. [more]
You may also access this article through our web-site http://www.lokvani.com/